Our service providers
Other organisations may receive your data when they provide us with services related to the study. Ipsos is the research organisation (or survey agency) which is acting as our data processor to undertake the study sampling and recruitment tasks, and to carry out the interviews for phase 1 of the study.
Biological laboratories
With permission, we collect biological samples from you and your baby which are then sent to accredited laboratories that store and process these samples for research.
International email, marketing automation, and customer engagement service providers
We use Dot Digital to send you emails about the study. In order to do this, we share your first name, email address and serial number with Dot Digital. Dot Digital will receive your IP address when you visit their site. Your survey responses are never sent to Dot Digital. You can unsubscribe from email newsletters at any time (information on how to do this is provided every time we send this information to you).
We also use Qualtrics, an online survey platform, to contact you and to ask you to provide feedback about the study. If you complete this form, your details will be shared with Qualtrics.
Providers of ‘administrative’ data
It’s your choice whether we share contact details and personal information with government agencies so that we can link data from their records to study data.
The research community via Trusted Research Environments
Pseudonymised study data is made available for research purposes to the research community from around the world under secure access arrangements. Research data include survey responses as well as other research data such as linked administrative data and are either securely deposited at UK data sharing repositories called “Trusted Research Environments” (TREs) such as the UCL Data Safe Haven, Secure Lab at the UK Data Service or released directly to the researchers following substantial data de-identification.
Access to sensitive data or data that could identify you is managed by the https://cls.ucl.ac.uk/wp-content/uploads/2017/02/CLS_DAC_Terms_of_Reference.pdf. Information about how researchers access data from the study, is described on the CLS website at ‘Accessing data directly from CLS’: https://cls.ucl.ac.uk/data-access-training/data-access/accessing-data-directly-from-cls/.
Researchers can apply to CLS Data Access Committee (DAC):
- For genetic data linked to survey data
- For biological samples and related data such as DNA: including for genotyping or for generation of new analyses (an analyte is a substance whose chemical parts are being identified and measured). Further information on why we process your DNA sample is available here.
- For CLS to do extra linkages of data from external sources to your survey data.
- For data that has not been deposited at a TRE or which is held in non-digital formats.
- For access to research data deposited in a UK Trusted Research Environment.
Organisations that we communicate our research to
Our surveys sometimes ask you to describe your experiences in your own words. Pseudonymised responses may be quoted in press communications about the research and study data. Other people will not be able to identify you through your responses unless you have agreed to reveal your name.
Public authorities and your stable contacts
In exceptional circumstances, your personal data may be shared securely with public authorities/your stable contacts, if something you tell us indicates that someone is at risk of harm.
Information that we collect from you and other sources, and who we share it with, is summarised in Table 2.