Who has approved the study and who will put the study in touch with families?

The study has received UK-wide approval from an NHS Research Ethics Committee. Approval by special committees in each country is also needed to allow government departments and agencies to provide Generation New Era with families’ contact details and additional information from records of births.

In England and Wales, this was approved by NHS England and the NHS Health Research Authority’s Confidentiality Advisory Group. NHS England will provide the information about families so they can be invited to take part.

In Scotland, this was approved by the Health and Social Care Public Benefit and Privacy Panel. Public Health Scotland will provide the information about families.

In Northern Ireland, this was approved by Health and Social Care (HSC) Trusts. The HSC Business Services Organisation will provide the information about families.

You can find out more about this on the Looking after your information pages.

  

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