You do not have to take part in Generation New Era if you do not want to, and you have the right to withdraw from the research at any stage, without having to give a reason. If you do withdraw or if we lose touch with you, we will retain and continue to use your study information for research.
If you choose not to take part, your and your baby’s name and address from birth records will not be kept or used for any other purpose. We will use other limited demographic information from birth records to help us understand who hasn’t taken part, and then securely delete it.
In Northern Ireland, this demographic information will only be accessed using a safe setting hosted by the Health and Social Care Business Services Organisation (BSO). If you decide not to take part on receipt of the initial letter from your Health Trust and let BSO know at that time, you and your baby’s name and address will not be passed to the study team. ..
You can find out more about this on the looking after your information pages.