In England, Wales and Scotland, we hold your name, address and additional information about you and your baby from records of births. This may contain details of your and/or your baby’s race and ethnicity. In Northern Ireland, we hold your name, address, and your and your baby’s month and year of birth from health records. As well as inviting you to take part, this information is used to make sure the study represents the UK population, and to help us understand who does and doesn’t take part.
We also receive address information from health records. Table 1 in the privacy notice summarises the data that we hold about you and your baby from birth records.
This Table reflects the information we hold on families for phase 1 of the study. It will be updated in 2026 prior to families being invited to take part in phase 2 of the study. No information on phase 2 families will be received until 2026.