Tables 1 and 2 ‘who we share your data with’ in the study privacy notice summarise the data that we hold for the study including the information provided by the organisations who provided your details to invite you to the study.
These Tables reflect information we received and share about families for phase 1 of the study. It will be updated in 2026 prior to families being invited to take part in phase 2 of the study. No information on phase 2 families will be received until 2026.