Yes, the study receives information from other sources including:
Information from government departments and agencies: you may have chosen to add your health, education, and social care records, and those of your baby, to the survey data. These departments and agencies are trusted to keep your personal details secure. More about adding information to your record from other sources is available here. Adding this information helps to build up a fuller picture of the lives of a new generation and will be used to answer important research questions and to improve families’ lives. Information from your records will be made available to researchers via secure mechanisms such as the UK Data Service or similar organisations.
Information from our contact tracing activities: We use information from the records of NHS and contact tracing services to update your record to keep in touch with you.
Mortality information from the NHS: we have permission for the NHS to tell us if study members or their parents have died. We use this information, so we don’t contact those who have passed away.
The NHS national data opt-out in England does not apply where you have chosen for us to link your health records to your survey data.
Information about where you live: We use your address to add information about the area where you live (e.g., about the local environment, weather, pollution, and the facilities available) and about your property.
We do not ask your permission to add this information because the data is not individual-level information about you. Frequently, this information is publicly available and adding this information does not usually require us to share any of your personal information with any other organisations.
However, if you would prefer that we don’t add any information about your area to your study record then please let us know by contacting us at:
Email: gnestudy@ucl.ac.uk
Post: Freepost GENERATION NEW ERA or Generation New Era, Centre for Longitudinal Studies, UCL Social Research Institute, 20 Bedford Way, London WC1H 0AL
For phase 1, although no further interviews are planned, we may still add this information from other sources. This hasn’t been decided yet. We will update these website pages with more information about this in the future. If you prefer that we don’t do this, please let us know.