Information that you share with us during surveys:
- Personal data that relates to and can identify you (e.g., contact details and personal information).
- Sensitive / special category personal data (e.g., details about race or ethnicity, religious or philosophical beliefs, sexual orientation, political opinions, trade union membership, information about health and genetic data).
- Biological samples: (e.g., saliva samples if you agreed to give samples for yourself and/or your baby)
Information from the data that you share with us during surveys:
- Research data from your survey answers: We hold sensitive research data and other research data that could potentially identify you. This includes research data from the study survey, sensitive data, and linked data. The information that would directly identify you is removed from this data before it is safely deposited at national data sharing stores.
- Genetic information from your and your baby’s biological samples (if you agreed to this): Once analysed, this will include information about your and your baby’s genotype. This data is stored securely and will be used in the future for research purposes under restricted access arrangements.
Data relating to family members of study cohort members
During surveys we may have asked you to provide information about family members of study members such as your child’s other parent (including if you don’t live with them) and/or your partner.
Family members may also have provided information about themselves by participating in the survey or providing biological samples.
Information that we collect from you and other sources, and who we share it with, is summarised in Table 2 of the privacy notice.