If we lose touch with you, we will try and find new contact details for you so that we can ask you if you’d like to continue taking part.
The information which the study has already collected about you will be kept and continue to be used for research unless you tell us not to. It will be retained for other study purposes where the law allows us to do this. It will be kept for the duration of the study or until no longer required by the study. Further information about this is given below.
Your contact details:
Your contact details will be removed from our mailing lists as well as the mailing lists of the external organisations we contract to carry out the study. We will not contact you again to ask you to participate in Generation New Era unless we find new contact details for you.
We will, however, continue to securely store your contact details within the Centre for Longitudinal Studies (CLS) because this provides us with a record of your previous participation and could help us find new contact details for you. If you have given us permission, then your contact details will also still be used by us to add information from administrative records held by government agencies (described below).
Your survey data:
The information you have given to the study will be deposited in pseudonymised form at secure data sharing platforms including the UK Data Service. Your pseudonymised data will continue to be made available to researchers via secure data sharing platforms.
We will continue to store this information securely within the Centre for Longitudinal Studies (CLS). The survey data that you have given to Generation New Era is important research data collected in the interest of the public. Our research findings will be widely used to shape policy and practice.
Your biological samples:
Any biological samples you have provided for future analysis, were used for DNA extraction. The DNA extracted from any saliva samples you gave will continue to be used for research unless you request for this to stop.
Information from administrative records held by Government departments and agencies:
If you have previously chosen for us to add information from administrative records held by government agencies such as the National Health Service (NHS) to the data you have provided us during the surveys, we will continue to add information from these records. Any data from these records which has already been obtained and deposited in pseudonymised form at data sharing platforms will continue to be made available for research purposes.
Information about where you live
We use your address (and previous addresses) to add information about where you live such as the local environment, weather, pollution, and the facilities available (e.g., shops and green spaces). The information that we add may be about your local area as a whole, your street or sometimes your specific address. We will continue to do this, using the information we hold about where you lived up to the point at which you stopped taking part in the study.
If you took part in phase 1, we may still add information from administrative records for your and/or your child, if you gave us your permission, or about your property or local area. If you provided a saliva sample for you and/or your child, we may still add genetic information.
This hasn’t been decided yet. The analysis of DNA is subject to funding, which means that any data may not be available for some time. No information from any of these sources has been added so far. We will update these website pages with more information about this in the future.